Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2019 events
Tell your story!
The Walking Dead.
Tyrone - United States
Undiagnosed
I have been living with a fecal odor for over 10 years now. I have tried everything to fight against the odor to no avail. I'm constantly harassed, teased by people and it hurts so deeply. There is nothing
Living with Alopecia: It’s
frankie - United Kingdom
Alopecia
Alopecia is something that I did not expect to get in my life. It is a condition that I knew others had, but as with any illness, we just don’t ever see ourselves contracting it. I was in a state of shock
The Journey of Champ1 mutation
Lisa smith - United States
champ1 mutation
My beautiful daughter Breanna is 20 years old in March and functions around the age of a 4 year old. She loves people and is very social but there are alot of times severe behaviors get in her way..We