Welcome to the Rare Disease Day PhotoWall.
Click on any photo to read more.
Have you got a story to tell? - Add your photo to this photo wall!
Yael from Israel has DDDPeters anomaly??pompeSara,un sorriso contro la KawasakyEvery day holds the possibility of a miracleKendra Dawn Fuller fighting GM1 GangliosidosisCarterTwins Adelina si LoredanaHannah...I donLiving with Primary Ciliary DyskinesiaCharlotte, Jacobsen syndromewww.sindromedacaetana.comLiving with Fibrosing Mediastinitus
Sweet Baby BarnesMeMy Ada BugHereditary Angioedema - a rare diseaseMy Little Soldier: CamyliaAttempt at brain surgerySurviving to Thriving with Masa/Crash SyndromeSÃO PAULO SE UNE PELAS DOENÇAS RARAS NO BRASILPARANA SE UNE PELAS DOENÇAS RARAS NO BRASILГалочкаChelsea "my angel here on earth"Mito fighterI Support Rare Disease Day
Gaucher friendsCopingCentral Pain Syndrome: I am one of 100,000Sin miedoTodos vacunados!!!Vacunando contra la indiferenciaLucía and their friends the mast cellsIn Memory of Kayla Marie Dawn OChildhood Cancer IsnDaniel, An Angel of Hopeme and my babySmile and the world will Smile with youArian Chowdhury, a MPS-II patient, with his parents
My Sister Saved My LifeWhat heart block looks likebeforeTrigeminal Neuralgia Type 2Living with MGSMaels live - with Niemann Pick CEmma CruzTessaVictory!AlexOlivia TooleOlivia Toole
Power of Positive ThinkingLandon (williams syndrome child)Sam Clegg - Prune Belly SyndromeMy EB Warrior JacksonPeripartum CardiomyopathyChris and TaraRUPSA CHATTERJEEmy herosMeNicoleThe campaign on Rare Diseases by Sheikh Hamdan Bin Rashid Al Maktoum Award for Medical Sciencesmarathon for lifeRDD Bradford, West Yorkshire
Nusrat Qureshi from Contact-a-family, Bradford, UKZeshan HussainCatherine Whibleyi have two rare diseasesqueenrose blanche de la pureté sous la pluieAnn MargretPrincess of Asturia and FEDER in SpainDivulgação RARE DISEASE DAYBumpy and Beautifulepidural to a life of painAoede Wins Awards!Strongest Woman I Know, My Mom!!
CateHope for the FutureI have CADASIL3rd Annual Worldwide SMA Syndrome Awareness Day ("Purple Day") and For Rare Disease Day 29th February 2012this is what RSD and PRS look likeCarolineKeagen Lowery osteogenesis imperfectalove of my lifeMast CellMast CellCystic Fibrosis HasnAppendix Cancer / PMP SurvivorI Dont Look Sick
I SUPPORTDario & Martina - SanRares mais forts ensemble à ParisJoining hands for Ehlers-Danlos syndromeCanThrombotic Thrombocytopenic PurpuraBlepharitisI have CADASILPaul with PSPMIC Supports Rare Disease Day!CasenUnstoppable in StilettosErythropoietic protoporhyria with Liver Involvement
LetBilly BonesA Missing Piece of TeralynnMy heroes!Emma & Elli TTTSLennon UCD CPSCampbell MagnoHelping raise awareness for EE & other rare diseasesMast Cells DonM-cmtcEmilyITPMastocytosis,
Naysa- Miracle of GodT O PRARE LUNG DISEASESmile with a rare disease!!!!AlessandroTrigeminal NeuropathyHugs for Heroes-- Supporting FPIES Children!Sweet SienaRare but smiling!Some military Friends still believe...MeLisaOwen Bishop Bilateral Retinoblastoma
Jan AllmonDecompression Surgery For Chiari MalformationRaising awareness of rare chromosome disordersRobbieMy surgery a year 02/28/11 for my shuntTORINOI have type III Ehlers Danlos SyndromeJack Connors- Eosinophilic Esophagitisthe acromegalicJoyful AdalineMarco Vignale, ponderingBrayden Alexander Harper, HydranencephalyMaya
Mastocytosis, Idiopathic thrombocytopenic purpuraMastocytosis, Idiopathic thrombocytopenic purpuralauren face of bilareral Wilms tumor and behcets diseaseOliviaConnorJake and JordynBlakeSeamusTraveling to RomeHumberto DaSilva MPSII VenezuelaTommy (left) has 1P36 Deletion SyndromeJilly and Amy Henhousehereditary spastic paraplegia
Aoibhe and lauren, SistersJuliemy sister!!!Primary immune deficiency diseasesAmber BearFriedreichnothing keeps her from smilingOcular MelanomaJoseph Jr. - GalactosemiaImelisa l. rockhill, JDIceman and StormyHaven 8 Years Old
Taylor McClungDancing my Way Through GastroparesisCaitibugEn contra de los ElementosGrahamBeckyHarry Crowther - Our HeroMarco Vliving and lovingA Face of Localized SclerodermaA Morrison Center familyCAPS*Kate Bowdish
Living with Linear Morpheamitochondrial trifunctional protein deficiencyIndepence DayHungarian RDD 2Hungarian RDD 1Missybloodywishfulfulthinking.blogspot.comLiving with MastocytosisEvanSergio Cardenas MUCOLIPIDOSIS II/IIIALONSO ALEXANDRE CHILENO DE CORAZONdaisy<3Keep smiling!
Vet MedElias (Dravet Syndrome) with his little brotherT O POlivia - 18monthsPSP Paralisi Sopranucleare ProgressivaBellaLiving Life, Visiting Seattle June 2011me and my favorite dogzebra me :)8 years old and living life to the fullest!Megan: MastocytosisAngelman syndromeLiving Life!
the best boy in the world with cobalamine C deficiencyLacey A Face Of IHAbby LouAbigail...rare chromosome disorderSmilePULMONARY HYPERTENSIONCryoglobulinemia - SurvivingHope...itSPIDER ... CICCIORiana Humble, Diagnosed with Beckwith-Wiedemann Syndrome November 2011Doug has DuchenneRare Disease Day CairnsCoping with Chronic Illness: Ehlers-Danlos Syndrome
21st BirthdayMultiple Sclerosis, Psoriasis, and Sarcoidosis."Hands of the Cause"NOMIDCarolDystonia, third most common muscle disorderIntercranial Hypertension. Believe and achieve.Sami Jo and DavidCryoglobulinemia an MeDuchenne Foundation logoNot just filling in time with DuchenneHeHope
Faces of Cavernous AngiomaZane and MeSweet EmaleighAppendix Cancer / Pseudomyxoma Peritonei SurvivorRehab After the StruggleStiff Person SyndromeJohnny-My Brother, My AngelCorinna HPPHistiocytosis has no frontierCarola smileLiving with HNPP and Menieremy zipper scarOur Special Little Girl
Our Special Little GirlOur Special Little Girliris my wedding daysyndrome PHACESEvie-Anne has smileWegenerTara Sky Kelly - genetic disorderCharcot Marie ToothMastocytosisbundled for lifeMími my loveMa soeur IsabelleMELINDA LIVING WITH Hypophosphatasia
Pseudomyxoma SurvivorShes like brand new shoes everydayLiving with Marfansthe face of sclerodermaI have a faceEuropean Chromosome 11 NetworkFibrous Dysplasia Miraclebaby jeremy mastokid princeTuberous sclerosis complexAlkaptonuriaHereditary AngioedemaSevere Combined Immunodeficiency (SCID)Ask Me About AIH (Autoimmune Hepatitis)
Avery. Angelmans SyndromeAt Miami ChildrenAnti-NMDAR Encephalitis: Rare but Strong TogetherEzra Grace PBDItLiving with Ehlers-Danlos SyndromeChildrenPolicondritis Recidivante en PediatriaPolychondritis in PediatricDoris living with Chiari Malformation and Psedutumor Cerbriinternafmio angelo gabrielHAE in Australia
A fight involves two!Branching Out for a Cause & Friends SupportOmidCameron as a vital young adult!I Stand With CourageSindrome de Prader WilliMy Little Princess Kennadi (Lissencephaly ,age4)Joy in livingEnjoying time togetherONE MOTHER, ONE SON...ONE MISSION!Intracranial Hypertensionliving with chiari malformationStill smiling with Gaucher
Superhero- Mitochondrial diseaseFriedreichLoving life even when itLife with an Invisible DisabilityGod Is Good!!CADASILFUORI DAL BUIO | OUT OF DARKNESSME RIDING MY TRIKE IN RIDE ATAXIA PHILLYMy heroI am the face of IHFriedreichSOARING VOICESSOARING VOICES Campaign
We made it to One!!Sam with two rare diseasesMPSThere is hope!skydiveI try to keep goingCheryl FieldsJohn CernosekOlivia GraceBoundless Joy!Hope for a cure for FA!Worldmetamorphosis
Faces of GIST CancerKeep BelievingLife after Stevens JohnsonYvonne Bergeron DreptateLiam.living with Congenital Disorder of GlycosylationI will not give upHayden living it upMom and Cort at the hospitaldown, but looking up.Dylan,Bennett Systemic AutoInflammatory SyndromeLiving With Stiff Person SyndromeGrandma and Lucas
Race Across America with FriedreichMary Vida (FriedreichRodolfo Andrés Sturge-Weber syndromeSofia Yuneisy Ojeda Hernandez, Enfermedad de KrabbeTESTScleroderma support group walkLuca FilippiThey said it couldnAddison AmaruPark DayAngelman Syndrome at the parkHisan ul IslamSmiling through Idiopathic Intracranial Hypertension (IIH)
Fibromuscular Dysplasia an unfashionable diseaseOlivia- Mastocytosis--UPHappy New YearLangerhans Cell HistiocytosisCreating Art with My HandsOmidDel-"RAY-OF-HOPE"-Walk-A-Thon Event 2011OmidReed, Age 4, Safilippo SyndromeEthan age 2 1/2 diagnosed with LymphangiomatosisIsabella lives with rett-syndromeJACK SSHDSyndrome PHACES
ThriveLaurie/Stiff Person SyndromeEmily, Living with Macrophage activation syndromeMaree - Idiopathic Intracranial HypertensionMRI SCANRenal Tubular AcidosisChrissy, age 11, born with HydranencephalyWesley and Moebius SyndromeWesley and Moebius SyndromeWesley and Moebius SyndromeWesley and Moebius SyndromehappyLymphangiomatosis - A life of uncertainty
Dorothea McGuire Foundationthe latest of medevon mckay age 16 castlemans dieaseJessica Antonio-Waiting for a cure for APSRare Journeys of LoveJack with MastocytosisBradley, 11 months oldCiarra- Living with LCHTria HallSevere Aplastic AnemiaMy Beautiful BethWinning the BattleSmiley girl-Mowat Wilson Syndrome
Invisable MeMy Darling Taylor"Happy" Rare Disease Day!My Name is Morgan and I have Cohen SyndromeMichael Zimanske - Be The ChangeKristin happy!Crisis of HAE2nd Birthday!Taking time to smell the flowers!Addi and Cassi HempelAmyliodosis AwarenessLado/ IFace of IH
Morgane PetersCullenThe Face of Intracranial HypertensionNF1 ou RecklinghausenNF1 ou RecklinghausenAmyloidosis Awareness in Memory of DadBaby TrippDon BrockmanAfter Brain SurgeryTEAMWORK is EVERYTHING when afflicted with a Rare Disease!Cns histiocytosis=no more climbing!My beautiful Sarah!radi lyes et Dr Bouras
Cannelle in ParisKonnorKlara BethstargardtJosephmps VIChronic Lung Disease DoesnMyself and my grandsonThe day of my shunt surgerymps I HurlerHunter Mexicomy beautiful son Pavelmy beautiful son Pavel
jajax mexicojajax mexicoKeep smiling!!!RSD-CRPS with severe BURNS!!!!Living with Intracranial HypertensionJust sunsetFind a moment happy!I Am The Strength Behind AtaxiaRoss age 13Subcortical Band Heterotopia -Matthew Sloan WalkerRelapsing Polychondritis in left earHemophilia Doesnjajax
navidad MPSJAJAXLiving with Stiff Person Syndromemps Mexicomps MexicojulietMPS1mps1mps2mps MexicoXiumenaMPS1Ximena es bendecida por budaJim "Fireball" BoltonJim "Fireball" BoltonHaven Fowler - ROHHAD / Ganglioneuroblastoma Cancer
Systemic Mastocytosis.. numbers increasing!Treatment at MD Anderson Cancer CenterBACK TO WORK-šance na návratBACK TO WORK-šance na návratBig smileTarlovova cysta-TCSupport of a loving familyGuillain-Barre Syndrome (GBS)Guillain-Barre SyndromeGuillain-Barre SyndromeGuillian Barre Syndrome (GBS)Mr Charles, 2 yearsHelp!
Urla del silenzio (The shout of the silence)I am MineTarlov CystOur little angel Josephie RosefriendsBallon dancingSnow funLittle horse for a little girlIn safe armsAlba playing with friend on trampolineMaria Beatriz Tetralogia de FallotMaria Beatriz Tetralogia de FallotMaria Beatriz
Maria Beatriz 1º aniversáriomy diseaseBlessedAmici per la pelleAmici per la pelleKNOWBeautiful "Princess Peanut" EmilyHappinessI hope...in spite of this!Icecream... for the first time... in my hand...mmhTo be or not to be, this is the questionMy special sisterThis is me on a better day
HaemangiomaFighting with artificial ventilationchillin by the poolchillin by the poolMy special sisterI