Welcome to the Rare Disease Day PhotoWall.
Click on any photo to read more.
Have you got a story to tell? - Add your photo to this photo wall!
God Is Good!!CADASILFUORI DAL BUIO | OUT OF DARKNESSME RIDING MY TRIKE IN RIDE ATAXIA PHILLYMy heroI am the face of IHFriedreichSOARING VOICESSOARING VOICES CampaignWe made it to One!!Sam with two rare diseasesMPSThere is hope!
skydiveI try to keep goingCheryl FieldsJohn CernosekOlivia GraceBoundless Joy!Hope for a cure for FA!WorldmetamorphosisFaces of GIST CancerKeep BelievingLife after Stevens JohnsonYvonne Bergeron Dreptate
Liam.living with Congenital Disorder of GlycosylationI will not give upHayden living it upMom and Cort at the hospitaldown, but looking up.Dylan,Bennett Systemic AutoInflammatory SyndromeLiving With Stiff Person SyndromeGrandma and LucasRace Across America with FriedreichMary Vida (FriedreichRodolfo Andrés Sturge-Weber syndromeSofia Yuneisy Ojeda Hernandez, Enfermedad de Krabbe
TESTScleroderma support group walkLuca FilippiThey said it couldnAddison AmaruPark DayAngelman Syndrome at the parkHisan ul IslamSmiling through Idiopathic Intracranial Hypertension (IIH)Fibromuscular Dysplasia an unfashionable diseaseOlivia- Mastocytosis--UPHappy New YearLangerhans Cell Histiocytosis
Creating Art with My HandsOmidDel-"RAY-OF-HOPE"-Walk-A-Thon Event 2011OmidReed, Age 4, Safilippo SyndromeEthan age 2 1/2 diagnosed with LymphangiomatosisIsabella lives with rett-syndromeJACK SSHDSyndrome PHACESThriveLaurie/Stiff Person SyndromeEmily, Living with Macrophage activation syndromeMaree - Idiopathic Intracranial Hypertension
MRI SCANRenal Tubular AcidosisChrissy, age 11, born with HydranencephalyWesley and Moebius SyndromeWesley and Moebius SyndromeWesley and Moebius SyndromeWesley and Moebius SyndromehappyLymphangiomatosis - A life of uncertaintythe latest of medevon mckay age 16 castlemans dieaseJessica Antonio-Waiting for a cure for APSRare Journeys of Love
Jack with MastocytosisBradley, 11 months oldCiarra- Living with LCHTria HallSevere Aplastic AnemiaMy Beautiful BethWinning the BattleSmiley girl-Mowat Wilson SyndromeMy Darling Taylor"Happy" Rare Disease Day!My Name is Morgan and I have Cohen SyndromeMichael Zimanske - Be The ChangeKristin happy!
Crisis of HAE2nd Birthday!Taking time to smell the flowers!Addi and Cassi HempelAmyliodosis AwarenessLado/ IFace of IHMorgane PetersCullenThe Face of Intracranial HypertensionNF1 ou RecklinghausenAmyloidosis Awareness in Memory of DadBaby Tripp
Don BrockmanAfter Brain SurgeryTEAMWORK is EVERYTHING when afflicted with a Rare Disease!Cns histiocytosis=no more climbing!My beautiful Sarah!radi lyes et Dr BourasCannelle in ParisKonnorKlara BethstargardtJosephmps VIChronic Lung Disease Doesn
Myself and my grandsonThe day of my shunt surgerymps I HurlerHunter Mexicomy beautiful son Paveljajax mexicoKeep smiling!!!Living with Intracranial HypertensionJust sunsetFind a moment happy!I Am The Strength Behind AtaxiaRoss age 13Subcortical Band Heterotopia -Matthew Sloan Walker
Hemophilia Doesnjajaxnavidad MPSJAJAXLiving with Stiff Person Syndromemps Mexicomps MexicojulietMPS1mps1mps2mps MexicoXiumenaMPS1Ximena es bendecida por budaHaven Fowler - ROHHAD / Ganglioneuroblastoma Cancer
Systemic Mastocytosis.. numbers increasing!Treatment at MD Anderson Cancer CenterBACK TO WORK-šance na návratBACK TO WORK-šance na návratBig smileSupport of a loving familyGuillain-Barre Syndrome (GBS)Guillain-Barre SyndromeGuillain-Barre SyndromeGuillian Barre Syndrome (GBS)Mr Charles, 2 yearsHelp!Urla del silenzio (The shout of the silence)
I am MineTarlov CystOur little angel Josephie RosefriendsBallon dancingSnow funLittle horse for a little girlIn safe armsAlba playing with friend on trampolineMaria Beatriz Tetralogia de FallotMaria Beatriz Tetralogia de FallotMaria BeatrizMaria Beatriz 1º aniversário
my diseaseBlessedAmici per la pelleKNOWBeautiful "Princess Peanut" EmilyHappinessI hope...in spite of this!Icecream... for the first time... in my hand...mmhTo be or not to be, this is the questionThis is me on a better dayHaemangiomaFighting with artificial ventilationchillin by the pool
My special sisterIDonAndrew enjoying a swim session with mumQueenie comforting her paralyzed friend.Katlyn ConstanceNurse, Nurse where are you?!Beautiful RobbyMonikaRhae feeding ElmoParker 3Lisa and ConnorLife after Cogan
Jack and CharleneHannahPrincess Lisa LCHTransplant Survivor Marathonerit doesntogether we have more power, and fun - WINNER of the 2010 PHOTO CONTESTKyle Frew - Shwachman-Diamond SyndromeLeo, my valiant and mature three-years-old nephewhot summer afternoonfather and sonboy hidding under bridge"The Man Joe"My Daddy
RARE DISEASE DAY PROCLAMATION IN INDIANA!! Together we are strong!!!Brayden Alexander HarperI have Dercum syndromePSP progressive sopranuclear palsyInto the lightYouDean Shenk - Prader-Willi SyndromeMy gorgeous Sam. www.helpsam.infoNathan - Dandy WalkerNoah - Mosaic Trisomy 16CoganForever lovechannelopathy foundation
Superior Mesenteric Artery (SMA) Syndromefeliz en su diaDominick & AnthonyThere is MORE to me than my diseases!DesenfocadaRayan and IlianJames Jan ElisGabriel and his puppetAnnie and her Service Dogstrong enough to resistPrecious Angelmy daughterAvery
SMA Syndrome "Purple Day"langerhans cell histiocytosis - JOHANMichel Beaudet and BilboI was someoneSds uk supports Rare Disease DayToni and Mike AbramNolan, age 6, has Prader-Willi syndromeAustin GrayChaseFun at DisneyBreakfastTired but... letFragile X
rebecca at a dia de los muertos celebrationRemember Rare Disease DayLife Cherish ItAiden - WarriorUndiagnosed6p25.1 deletion / 7q21.13 duplication Looking for a syndrome name- and awareness!!!Let Hope Take FlightAustin - Branchiootorenal SyndromeHow to get what I wantSr. Heather, OPAHumberto nos hace reirAngel Mason- Adrenoleukodystrophy (ALD)Mr charles, 2 years
Mr Charles, 2 yearsMr Charles, 2 yearsSkyelah Raine Truevy RuddROHHAD Syndrome Neuroblastoma CancerCavans JournerEvie Beth. 20012 - 2002Liliana in her favorite place:The Beach"Princess" Aaliyah Elizabeth HeinzelmanTnai living with IHsd de moebiusPH Girl Gets MarriedHope Is The Thing With FeathersLori Barker Summber of 2007
Cheeky EllaThumbs Up for BCCH ICUZeroI need helpsmiling boyCman with his edemaOur American IdolsPaula Mattis With Superior Mesenteric Artry Syndrome (sma)Nicola - Our Costello Princessliving with SclerodermaDercums Disease and Rare Disease DayIsaiah & Christian BrownLucas (duarte galactosemia)
LCHPříroda léčí-tady je mi nejlíp.My reason (human) for living.Pediatric MastocytosisSamantha GraceTarlov Cyst DiseaseMommy & Samantha ^j^Alexandra (Mastocytosis)CanRyanKevinShadow of myselfRemember to Smile
Monika on the goANTOINE - SYNDROME CDG 1aAlenka and MargaretaPediatric Mastocytosis: Urticaria PigmentosaBeautiful Nightmaremirada desenfocadaLife with IH!!Parry Romberg Syndrome patient,advocate.momNatalie Sanchez before diagnosisour beautiful girlsDonald C. BrockmanSurviving CML, a rare cancerJust One Face Of ICH
Langerhans Cell HistiocytosisStill Wearing the Care About Rare ShirtMary-Ann, IIHILove Conquers AllMet MikeyRijk aHUS & DDDsara torrealbaplasteredWho Dat Care About Rare DiseaseGorlinDylan Age 6 SMAASEM Catalunya
NeurofibromatosisAustin lives with BattenKlaraKlaralooking goodLA MIA MERAVIGLIOSA CREATURADaniel and Dad skiing double black diamonds at Alpine Meadows.My BeccaThe Vlachos Family LEIGHS 9176tcmalade mais en actionun fauteuil pour deux!mère et fille, à nous lLUCIA A SUS DOCE
DercumLife with Ehlers Danlos SyndromeVivre avec la maladie de SAPHO! Esperando la llamada de una hija, los domingos Sofi nos llama !!I am a pitcher!Slam DunkHannah"I Care About Rare" Every DayAngelman SyndromeAngel AndreaAndrea, my Angelpre-diagnosisLachlan
Agustín, un luchadorLucy our AngelLavi Ben Moshe, 20 monthsLavi Ben Moshe, 18 monthsLavi Ben Moshe, 1 yearLavi Ben Moshe, 7 monthsLavi Ben Moshe, 4 monthsParry Romberg SyndromeDaltonboyIan and his brother XanderCDG SurvivorTwo Diseases - One FamilyNatalie