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WHY DON'T YOU TELL US YOUR STORY?
Share your photos, videos and your experiences! Be part of Rare Disease Day by informing others and raising awareness—sending a message of solidarity and community.

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Stacey - United Kingdom
Calum McPherson's condition has left him with severe speech difficulties. There are a few important things to know when you first meet young Calum McPherson. The first is that he has one of the most infectious laughs in the world. The second is that he can hear absolutely everything you say. Just because he hasn't been able to speak for the first ten years of his life, says his mother Stacey, ...
Kathleen - Australia
4 years ago I was diagnosed with autoimmune hepatitis, I have been in remission for 1 year but still have other health issues, I would love to go to rare disease day in Adelaide but can't find one? Keep going people, you're not alone.
Mariani - Brazil
Augusto Mezadri was born on April 24, 2014. He is Daniela and Lucas Mezadri's son. He was diagnosed with Mucolipidosis II when he was 14 months old. His mom's pregnancy was OK till some exams showed the amniotic fluid was turning down (33rd week). She stayed in hospital for 3 days. In the 37th week again ... Augusto was born with 38 weeks. He was great!!! In his 4th months old he had inguinal hern...
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