Official Rare Disease Day Video

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February 29, 2012 marks the fifth international Rare Disease Day. On this day hundreds of patient organisations from more than 50 countries worldwide are organising awareness-raising activities converging around the slogan "Rare but strong together".

Read about some of the stars of the video

Christy

lives with: Retinitis Pigmentosa. Read his story >

Lauren

lives with: Friedreichs Ataxia. Read her story >


Clare Louise

lives with: Friedreichs Ataxia. Read her story >

Evan

lives with: Epidermolysis Bullosa. Read his story >


Jamie

lives with: Ehler-Danlos Syndrome. Read his story >

Josephine

lives with: Alpha-1 antitrypsin def. Read her story >

Ackowledgements

This video clip has been produced by Animo Productions with pro bono support of Burson-Marsteller Brussels. The patients featured are members of the Irish Rare Disease Patient National Alliance (Genetic and Rare disorders Organisation). We thank them and GRDO for their invaluable contribution.

Our thanks also to Grégoire for permission to use his song "Toi et Moi" as the soundtrack to the video.

If you have questions or comments, please contact: rarediseaseday@eurordis.org