News

27 Rare Disease Day news
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Geoffray and his sister (who is 8 years older than he is) have suffered from poor sight since birth, without a precise diagnosis. Geoffray had to wait until the age of 13, in 1996, before meeting Dr H...
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Meet Océane, one of the stars in our Rare Disease Day 2017 video, who lives with pemphigus, a disease that affects the skin and mucous membranes. Océane found life as a child very complicated, she was...
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Meet Mathieu, who features in the Rare Disease Day 2017 video alongside his mother, Stéphanie. Mathieu, who is 10 years old, lives with congenital myasthenic syndrome, a group of genetic disorders tha...
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The Rare Disease Day 2017 official video is OUT NOW! Share this video on social media and with your friends and family to help spread the word about Rare Disease Day, 28 February 2017! Together we ca...
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EURORDIS is very pleased to announce that Sean Hepburn Ferrer, the eldest son of the late actress and dedicated philanthropist, Audrey Hepburn, is Rare Disease Day 2017 Ambassador. Sean Hepburn Ferrer...
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Available online, the official Rare Disease Day poster, is out now! Based on the theme of RESEARCH, the poster embraces the possibilities that research can bring, a bright and hopeful future. The visu...
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Research brings hope to people living with a rare disease The Rare Disease Day 2017 themes is research. The Rare Disease Day slogan is 'With research, possibilities are limitless'. Imagine going ...
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Watch our Rare Disease Day highlights slideshow! First of all, a big THANK YOU for all of your efforts. Rare Disease Day 2016 was bigger and better than ever before!  Key facts and figures! Eve...
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EURORDIS is very pleased to announce that our Rare Disease Day 2016 Ambassador is Sean Hepburn Ferrer; the eldest son of the late actress and dedicated philanthropist, Audrey Hepburn, and the actor,...
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With less than 2 weeks until Rare Disease Day 2016, each one of us can show our solidarity as together we raise awareness for people living with a rare disease and their families. Find below 5 things ...
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