News

28 Rare Disease Day news
news image
With less than 2 weeks until Rare Disease Day 2016, each one of us can show our solidarity as together we raise awareness for people living with a rare disease and their families. Find below 5 things ...
news image
  On the 29 February, the rarest day of the year, patients around the world will ‘Join us in making the voice of rare diseases heard’ by marking the ninth annual Rare Disease Day! Organisations ...
news image
Elisa is 18 years old and was born in Treviso, Italy where she lives with her parents Sergio and Catia. Elisa is living with Williams syndrome, a rare disease that affects around 1/20 000 births. Sh...
news image
We are delighted to share with you the 2016 Rare Disease Day video which you can watch here! We invite you to share it on social media and with your friends and family to help spread the word that 29 ...
news image
Rare Disease Day 2016 is shaping up to be the biggest awareness-raising campaign for rare diseases yet! With just over one month to go, participants in hundreds of cities and regions around the world ...
news image
Yuliya is 13 years old and is living with type 2 spinal muscular atrophy (SMA). She lives in Kharkiv, Ukraine with her father Vitaliy, her mother Svitlana and her 10-year-old brother Danylo. Spinal...
news image
The countdown has started! The 2016 website www.rarediseaseday.org is up and running which means that now is the time to start planning and posting your Rare Disease Day events.  Families, patient or...
news image
29 February 2016 is Rare Disease Day! Read more about this year's Theme and Slogan Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard 2016 marks the ninth yea...
news image
On 25 November there was an exclusive Rare Disease Day social media webinar hosted by Robert Pleticha, RareConnect Project Manager at EURORDIS. Watch this event if you want to know all the best hints ...
news image
Just 1 Day to Go until Rare Disease Day 2015! It's not too late: Find out how you can still Get Involved! See how the world is preparing for Rare Disease Day 2015!  ...
1 2