News

20 Rare Disease Day news
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Watch our Rare Disease Day highlights slideshow! First of all, a big THANK YOU for all of your efforts. Rare Disease Day 2016 was bigger and better than ever before!  Key facts and figures! Eve...
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EURORDIS is very pleased to announce that our Rare Disease Day 2016 Ambassador is Sean Hepburn Ferrer; the eldest son of the late actress and dedicated philanthropist, Audrey Hepburn, and the actor,...
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With less than 2 weeks until Rare Disease Day 2016, each one of us can show our solidarity as together we raise awareness for people living with a rare disease and their families. Find below 5 things ...
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  On the 29 February, the rarest day of the year, patients around the world will ‘Join us in making the voice of rare diseases heard’ by marking the ninth annual Rare Disease Day! Organisations ...
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Elisa is 18 years old and was born in Treviso, Italy where she lives with her parents Sergio and Catia. Elisa is living with Williams syndrome, a rare disease that affects around 1/20 000 births. Sh...
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We are delighted to share with you the 2016 Rare Disease Day video which you can watch here! We invite you to share it on social media and with your friends and family to help spread the word that 29 ...
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Rare Disease Day 2016 is shaping up to be the biggest awareness-raising campaign for rare diseases yet! With just over one month to go, participants in hundreds of cities and regions around the world ...
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Yuliya is 13 years old and is living with type 2 spinal muscular atrophy (SMA). She lives in Kharkiv, Ukraine with her father Vitaliy, her mother Svitlana and her 10-year-old brother Danylo. Spinal...
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The countdown has started! The 2016 website www.rarediseaseday.org is up and running which means that now is the time to start planning and posting your Rare Disease Day events.  Families, patient or...
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29 February 2016 is Rare Disease Day! Read more about this year's Theme and Slogan Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard 2016 marks the ninth yea...
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