Website:
www.rarediseases.ru / www.rare-diseases.ru
National Association of Organization of Patients with Rare Diseases «Genetics» & Russian Patients Union - Rare Disease Working Group
Rare Disease Day 2012 - February 29
Rare Disease Day Partners:
- EURORDIS
- EU Commmission
- EAHC
- NORD
- RadioOrg
- NATIONAL ALLIANCE OF PEOPLE WITH RARE DISEASES (NAPRD)
- CANADIAN ORGANIZATION FOR RARE DISORDERS
- Hrvatska udruga za rijetke bolesti - Croatian Society for Rare Diseases
- Cyprus Alliance for Rare Disorders (CARD)
- RARE DISORDERS DENMARK (SJAELDNE DIAGNOSER)
- ALLIANCE MALADIES RARES
- ACHSE ALLIANZ CHRONISCHER SELTENER ERKRANKUNGEN E.V.
- GREEK ALLIANCE FOR RARE DISEASE
- National Association of Rare Diseases Patients GENETICS
- RARE DISEASES HUNGARY - HUNGARIAN FEDERATION OF PEOPLE WITH RARE AND CONGENITAL DISEASES
- GENETIC AND RARE DISORDERS ORGANISATION (GRDO)
- UNIAMO - FEDERAZIONE ITALIANA MALATTIE RARE
- ASSOCIATION LUXEMBOURGEOISE D'AIDE POUR LES PERSONNES ATTEINTES DE MALADIES NEURO-MUSCULAIRES ET DE MALADIES RARES
- VERENIGING SAMENWERKENDE OUDER EN PATIËNTENORGANISATIES (VSOP)
- FEDRA - Federaçao Portuguesa de Doenças Raras
- Aliança Portuguesa de Associaçiones das Doenças Raras
- Genetic Alliance UK
- ProRaris
- ROMANIAN NATIONAL ALLIANCE FOR RARE DISEASES
- Russian Patients Union - Rare Disease Working Group
- FEDERACIÓN ESPAÑOLA DE ENFERMEDADES RARAS
- Rare Diseases Sweden (RIKSFÖRBUNDET SÄLLSYNTA DIAGNOSER)
- Georgian Foundation for Genetic and Rare Diseases