National Alliances and Partners

39 National Alliances and Partners
Highlights from Rare Disease Day 2014 in Australia In 2014 Rare Disease Day events  were held all over the Australia. S...
Phone: +61299675884
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The Belgian National Alliance, RADIORG, has grown with Rare Disease Day, first coming together in 2008. They now represe...
Phone: +32478727703
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CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong c...
Phone: +14169697464
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Rare Diseases Croatia is the umbrella organization that gathers 23 other non-profit organizations acting on behalf of pa...
Phone: +38512441393
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What is the Czech Association for Rare Diseases mission? The Czech Association for Rare Diseases (ČAVO) was founded in ...
Phone: +420774151290
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EURORDIS is a non-governmental alliance of patient organisations representing almost 700 rare disease patient organisati...
Phone: +33156535210
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Founded in 2000, "Alliance Maladies Rares" today includes more than 200 patient organizations and represents nearly 2 mi...
Phone: +33156535343
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Dear guests of the Rare Disease Day, People with rare diseases bear a difficult fate: the route to diagnosis is often a...
Phone: +4930330070826
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Rare Diseases Hungary - The Hungarian Federation of People with Rare and Congenital Diseases - (HUFERDIS) was created in...
Phone: +3617883881
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Ireland first participated in Rare Disease Day in 2008. Since then Rare Disease Day has been marked annually on the last...
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The Rare Disease Day Japan secretariat office is located inside NPO ASrid. Rare Disease Day events are planed to be orga...
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Welcome to the ALAN association The Luxembourg association for people living with a  rare disease - ALAN - is a non-pro...
Phone: +3522661121
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The Dutch Genetic Alliance VSOP (www.vsop.nl) is an umbrella organisation of about 70 national, disease-linked, parent a...
Phone: +31356034040
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The Romanian National Alliance for Rare Diseases - RONARD - was established in 2007 through a project initiated by the R...
Phone: +40260610033
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Slovak RD Alliance is currently a network of 18 patient associations in Slovak Republic which supports and connects pati...
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Rare diseases Sweden, founded in 1998, is a national alliance for different groups of rare diseases. As a public interes...
Phone: +468280311
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NGO "Rare Diseases of Ukraine" was founded in 2015; however, its recognition was a huge step by all patients organisatio...
Phone: +380503640673
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NORD, the National Organization for Rare Disorders, joined Rare Disease Day in 2009 as the official US sponsor of the da...
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Pro Rare Austria is the national alliance for rare diseases and was founded in the end of 2011 as a not-for-profit assoc...
Phone: +436644569737
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The Bulgarian National Alliance for People with Rare Diseases, NAPRD, was founded in 2007 and incorporates 49 rare disea...
Phone: +359888323748
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Chinese Organization for Rare Disorders (CORD), founded by China-Dolls Center for Rare Disorders in June 2013, is a non-...
Phone: +861083545711
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The Cyprus Alliance for Rare Disorders (CARD) was founded in 2010 and now comes together as the voice of around 6000 rar...
Phone: +35722319129
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Rare Diseases Denmark is a national alliance of 52 rare disease societies. We also host NURD - Network for Ultra Rare Di...
Phone: +4533140010
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Our organization, Georgian Foundation for Genetic and Rare Diseases (GeRaD), was formed in 2009. GeRaD represents a grou...
Phone: +995599294439
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The Greek Alliance for Rare Diseases is a non profit organisation, which aims to extend the knowledge of the common area...
Phone: +302107660989
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UNIAMO F.I.M.R.onlis, the Italian Federation of Rare Disease associations,is committed to protect the rights and improve...
Phone: +39064404773
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Latvian Alliance for Rare Diseases is national umbrella organization of rare diseases NGOs in Latvia. LRSA goals are:  ...
Phone: +37126720675
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In Macedonia, Rare Disease Day celebrations began in 2012, as organized by the patient organization "Life with Challenge...
Phone: +38970705446
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The New Zealand Organisation for Rare Disorders, provides New Zealand's central starting point for information about rar...
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Aliança is a non-profit organization. Aliança's goals are to work on prevention, diagnostics and rare disease treatment ...
Phone: +351914632404
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Founded in 2010, the National Organisation for Rare Diseases of Serbia is an umbrella organisation bringing together dif...
Phone: +381666672701
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The feelings of isolation and helplessness associated with rare diseases are experienced by over 3 million families in S...
Phone: +34915334008
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Rare Disease UK is the national campaign for people with rare diseases and all who support them. Rare Disease UK provid...
Phone: +442078310883
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