Friend of Rare Disease Day 2011
International Castleman's Disease Organization (ICDO)
Description of the activity: The International Castleman’s Disease Organization (ICDO) will launch video footage from the 2009 International Castleman’s Disease Summit AND host a live online event, “Castleman’s Disease Patients and Researchers . . . Leading the Charge and Working Together!” featuring a global panel of patients and physicians discussing diagnosis, treatment and management of Castleman’s Disease.
Contact person: Cathy Ferrone
Website: www.castlemans.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |