Friend of Rare Disease Day 2011
Turner Syndrome Support Society [UK]
Description of the activity: We will have represenatives attending the Rare Diseases Events in Scotland, Wales & Ireland showing our support throughout the UK. We will promtote the events on our website.
Contact person: Arlene Smyth
Website: www.tss.org.uk
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |