Friend of Rare Disease Day 2011
Queensland Angelman Association
Description of the activity: Highlight the importance of Rare Disease Day 2010 through our extensive network of Angelman Syndrome families; encourage our local media to inform the public on support needed for research and call attention to the current service gap within Australia for support and advocacy of rare conditions.
Contact person: Jen Kyriacou
Website: www.angelmansyndromeqld.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |