Friend of Rare Disease Day 2011
Gorlin Syndrome Group
Description of the activity: Support this campaign and encourage the support of patients, healthcare professionals and Government to bring about quality standards of diagnosis and care for all affected by rare diseases.
Contact person: Margaret Costello
Website: www.gorlingroup.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |