Friend of Rare Disease Day 2011
LUCIA ALAS DE ESPERANZA
Description of the activity: Adscribirme a la Asociación Colombiana de Enfermedades raras. trabajar por la mejora en las condiciones de salud de pacientes con Leucodistrofia. Participar del Simposio de Enfermedades raras en Colombia
Contact person: ANGELA PATRICIA CHAVES RESTREPO
Website: http://vidadefamilia.blogspot.com/
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |