Friend of Rare Disease Day 2011
Alpha1 Awareness UK
Description of the activity: The membership secretary of the charity Alpha1-Awareness-UK has written to our members in Scotland, Wales and Northern-Ireland urging them to attend the Rare-Disease events at their Parliaments or Assemblies as well as contacting their MSPs, AMs and MPs. She herself will attend the Welsh Assembly to support Rare Disease UK and to lobby, in both English and Welsh, for better treatment of patients with Alpha1 Antitrypsin Deficiency.
Contact person: Alan Heywood-Jones
Website: www.alpha1awareness.org.uk
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |