Friend of Rare Disease Day 2011
Alkaptonuria Society
Description of the activity: We will mention this via communications with other rare disease charities we network with.
Contact person: Bev Hebden
Website: www.alkaptonuria.info
Description of organiser: EURORDIS Member
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |