Friend of Rare Disease Day 2011
Prader-Willis syndrome Association in Sweden
Description of the activity: We will raise awareness of our syndrome on our own website. I also work in a school where I will make this day official by talking to the students and try to get them to be aware of the rre diseases that exist in our community.
Contact person: Cecilia Bjärgö
Website: www.prader-willi.se
Description of organiser: EURORDIS member
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |