Friend of Rare Disease Day 2011
Cri du chat Syndrome Support Group UK
Description of the activity: Continue our efforts in bringing knowledge of this rare syndrome to a wider audience through our network of families and associates.
Contact person: Ray Clarke
Website: www.criduchat.org.uk
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |