Friend of Rare Disease Day 2011
Eurordis
Description of the activity: each day i try to survive with my porphyria PAI...i put the logo on my facebook page http://www.facebook.com/#!/profile.php?id=1694391170
Contact person: Badea Valentina
Description of organiser: Patient
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |