Friend of Rare Disease Day 2011
Children's Mitochondrial Disease Network
Description of the activity: Raise awarness, via website, social network groups, members, media, groups we collaborate with worldwide.
Contact person: Paul Preston
Website: www.emdn-mitonet.co.uk
Description of organiser: Other Patient Organisation
Country:
|
Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |