Friend of Rare Disease Day 2011
Alpha-1 UK Support Group
Description of the activity: Rare Disease Day has already been promoted within our support group which has 140 members.
Contact person: John L Mugford
Website: http://www.alpha1.org.uk/
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |