Friend of Rare Disease Day 2011
Genetic Interest Group
Description of the activity: We will be working with Rare Disease UK to promote awareness of rare diseases throughout the UK, through the media and through parliamentary receptions.
Contact person: Melissa Hillier
Website: www.gig.org.uk
Description of organiser: EURORDIS member
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |