Friend of Rare Disease Day 2011
ALD Life
Description of the activity: We will ask our members to do awareness raising about rare diseases and promote fundraising activities on the 29th February with their friends, colleagues, family. All the money raised will be used to fund research project for new effective treatment for ALD and AMN.
Contact person: Paola Pierri
Website: www.aldlife.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |