All Friends of Rare Disease Day

Friend of Rare Disease Day 2011

ACHSE e.V.

Description of the activity: Among the annual ceromony of the Eva-Luise-Köhler-award for Rare Diseases on 1.3.2010 we are organizing several events in about 10 German cities to raise awareness for people with Rare Diseases.

Contact person: Rania von der Ropp

Website: www.achse-online.de

Description of organiser: EURORDIS member

Country:

Who are "Friends of Rare Disease Day?

Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaign

Become a Friend of Rare Disease Day