Friend of Rare Disease Day 2011
Soft Bones Inc.
Description of the activity: Locally high school kids are doing a bake sale to raise awarenes. They will make posters to explain all rare diseases and hypophosphataia. Hold a speaking arrangement at UMDNJ in New JErsey with doctors and patients in the area. In the United States we are going to pick 3 locations to hold a speaking engagements with doctors and patients about rare diseases.
Contact person: Jane Castello
Website: www.softbones.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |