Friend of Rare Disease Day 2011
The NOMID Alliance
Description of the activity: We are planning on an awareness event and fundraiser to benefit our website translation info many languages to increase awareness about Cryopyrin-Associated Periodic Syndromes )CAPS) worldwide.
Contact person: Karen Durrant
Website: http://www.nomidalliance.net
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |