Friend of Rare Disease Day 2011
Associação Portuguesa de Osteogénese Imperfeita
Description of the activity: I´ll send the information to all my contacts, I´ll brying an announcement on my T-shirt on that day. I try every day that each day is a little rare disease day.
Contact person: Céu Barreiros
Website: www.freewebs.com/aposteogeneseimperfeita
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |