Friend of Rare Disease Day 2011
Amy and Friends (Cockayne Syndrome UK)
Description of the activity: Raise as much awareness as possible!
Contact person: Jayne Hughes
Website: www.amyandfriends.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |