Friend of Rare Disease Day 2011
Tom Wahlig Foundation
Description of the activity: The foundation promotes research aroun "hereditary spastic paraplegia" (HSP)
Contact person: Christine Meier
Website: www.hsp-info.de
Description of organiser: EURORDIS member
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |