Friend of Rare Disease Day 2011
Tarlov-aracEuropeInformation
Description of the activity: Acting as each year, at the level of my town (conference last year) petition to EU from all members... Acting all over the forums I am in charge of to sensibilize all to the RDD , made a video last year, busy organizing a congress this year in Chambery
Contact person: Claudine Goze-Weber
Website: http://tarlov-arac.populus.ch/
Description of organiser: Other
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |