Friend of Rare Disease Day 2011
SHG Glykogenose Deutschland e.V.
Description of the activity: Wir werden gemeinsam mit der "Achse" (Allianz-Chronisch-Seltener-Erkrankungen)an Informationsständen in verschiedenen Städten in Deutschland über die Erkrankung und unsere Arbeit berichten.
Contact person: Gerda Kalle - Menne
Website: www.glykogenose.de
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |