Friend of Rare Disease Day 2011
Muscular dystrophy association of Slovenia
Description of the activity: On 25th of February 2010 we will organize press conference. Public and media will be focus on patient problems with rare diseases. At the conference there will be members of Patient Associations with Rare Diseases like: Gaucher Association of Slovenia, Cystic fibrosis Association of Slovenia, Fabry Association of Slovenia, Pompe disease, medical doctors who are working in the field of rare diseases, members of Government Institutions and media.
Contact person: Andreja Sustar
Website: www.drustvo-distrofikov.si
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |