Friend of Rare Disease Day 2011
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Description of the activity: we will informing all our familiy members with information about the day.We are releasing a press release and designing a poster using family members with the condition.
Contact person: Mrs Tracy Horsfield
Website: www.sdsuk.org
Description of organiser: EURORDIS member
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |