Friend of Rare Disease Day 2011
A.I.S.W. Associazione italiana sindrome di Williams Onlus
Description of the activity: One hope, one quest! A different way of life. build their future and create a new Choice ! For Our Children! Every people have a one ticket for a personal trip in this world. I will try to delete the tiket of my babyes, signed by a rare disease. I hope that one will be back white for her future.
Contact person: Giulia Ranisi
Website: www.sindromediwilliams.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |