Friend of Rare Disease Day 2011
Dystrophic Epidermolysis Bullosa Research Association of Canada (DEBRA Canada)
Description of the activity: We will advertise Rare Disease Day on our website and promote this important date to the Canadian media, as well as our DEBRA Canada members. We will work with CORD to assist them in additional promotion. We will provide you with our logo to illustrate our partnership and support of this special day.
Contact person: Gena Brumitt Gruschovnik
Website: www.debracanada.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |