Friend of Rare Disease Day 2011
Tuberöse Sklerose Deutschland e.V.
Description of the activity: We will inform together with representatives of the alliance for chronic rare diseases in Germany with information desks about rare diseases.
Contact person: Sandra Hoffmann
Website: www.tsdev.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |