Friend of Rare Disease Day 2011
Fondation sur les leucodystrophies
Description of the activity: Nous allons souligner cette journée avec l'aide de quelques restaurateurs qui aideront financièrement la Fondation, on en parlera dans les médias. Promotion with restaurants and medias.
Contact person: Mme Marjolaine Verville
Website: www.leucofondation.com
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |