Friend of Rare Disease Day 2011
National Gaucher Foundation
Description of the activity: The National Gaucher Foundation will display a Rare Disease Day banner or logo at their website and will contact the NTSAD in the U.S. to join forces with their efforts. Further, we will announce World Rare Disease Day on our genetic disease list serve.
Contact person: Rosina Papantonio
Website: www.gaucherdisease.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |