Friend of Rare Disease Day 2011
Syncope Trust And Reflex anoxic Seizures (STARS)
Description of the activity: STARS will highlight Rare Disease Day in its monthly e-bulletin and in the events section of the STARS website.
Contact person: Trudie Lobban
Website: www.stars.org.uk
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |