Friend of Rare Disease Day 2011
SOLIDARITE HANDICAP autour des maladies rares
Description of the activity: Participer à un rassemblement en France ou une action commune à notre collectif, mettre en avant cette journée sur le site et le forum, peut être lancer un nouveau communiqué de presse.
Contact person: Moissin Annie
Website: www.solhand-maladiesrares.org/
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |