Friend of Rare Disease Day 2011
Niemann-Pick Disease Group (UK)
Description of the activity: Our members and representatives will be encouraged to contact their local authorities and media to inform them of Rare Disease Day and the important message it carries.
Contact person: Toni Mathieson
Website: www.niemannpick.org.uk
Description of organiser: EURORDIS member
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |