Friend of Rare Disease Day 2011
Advocacy for Neuroacanthocytosis Patients
Description of the activity: Continue to raise interest and financial support for vital research into this devastating disease.
Contact person: Glenn Irvine
Website: www.naadvocacy.org
Description of organiser: Other Patient Organisation
Country:
|
Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |