All Friends of Rare Disease Day

Friend of Rare Disease Day 2011

Save Babies Through Screening Foundation UK

Description of the activity: We will be participating in the Rare Disease UK event in Scotland and will be doing something on raising awareness on our website.

Contact person: Pat Roberts

Website: www.savebabiesuk.org

Description of organiser: Other Patient Organisation

Country:

Who are "Friends of Rare Disease Day?

Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaign

Become a Friend of Rare Disease Day