Friend of Rare Disease Day 2011
Mal de Debarquement Syndrome UK Support Group
Description of the activity: Hope to raise awareness of MdDS and educate others who have never heard of it before about this disorder.
Contact person: Jane Houghton
Website: www.mdds.org.uk
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |