Friend of Rare Disease Day 2011
Thalassaemiehilfe ohne Grenzen E.V.
Description of the activity: We held an afternoon event with information, songs and dances at Moers/Germany. Main Topic: Thalessemia an orphan desease.
Contact person: Juergen M. Beith
Website: www.thogde.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |