Friend of Rare Disease Day 2011
sudan Acromegaly Organization
Description of the activity: I decided to organize a public view about the rare disease and the patient struggle.
Contact person: nada Ahmed Mohammed
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |