Friend of Rare Disease Day 2011
International Hydranencephaly Group
Description of the activity: Spread the word about the 7,000 rare diseases afflicting the people of this world, help to advocate for my own son living with hydranencephaly...raise awareness in every forum with ever person I have contact with. Blog: http://hydranjourney.blogspot.com
Contact person: Alicia Harper
Website: apps.facebook.com/causes/339012/41040781?m=71bb3202
Description of organiser: Other
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |