Friend of Rare Disease Day 2011
Ong Asa Rio
Description of the activity: Entrevista em TV aqui no RJ, mas em São Paulo terá uma caminhada em apoio ao dia de doenças raras. meu filho é portador da Síndrome de Angelman.
Contact person: Andreia de Souza Lombas Curi
Website: www.asario.org
Description of organiser: Other
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |