Friend of Rare Disease Day 2011
Associaçao Brasileira de Homocistinuria
Description of the activity: Vou participar da Primeira Caminhada sobre Doenças Raras ,que ira acontecer no Brasil ,para mostrar ao governo que existem pessoas com Doenças Raras e que precisao de tratamento
Contact person: Simone arede
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |