Friend of Rare Disease Day 2011
Genetic Disease Foundation
Description of the activity: The Genetic Disease Foundation (GDF) will be announcing the launch of their new, easy-to-understand educational Web site: KnowYourGenes.org. The site provides information for those considering genetic testing.
Contact person: Mariana Rodrigues
Website: KnowYourGenes.org
Description of organiser: Health professional
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |